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SAVE THE DATE...

Creating Together: Developing a Mental Health and Addictions* Research Agenda for Ontario

This province-wide process will bring together diverse stakeholders of mental health and addictions research with researchers, to jointly develop a research agenda that will help guide health systems/ services and population/ public health research investments and knowledge exchange activity in the province of Ontario over the next 3-5 years.

The project will involve a series of consultations with a range of stakeholders of the mental health and addictions systems (e.g. consumer/survivors, family members, clinicians, service providers, policy makers, researchers). The plan is to release a final report outlining a co-created mental health and addictions research agenda, in the early fall.

We’d like you to also consider sharing this invitation with someone else who you think would be interested in this topic and who could make a contribution to the session.

Please join us at our Ottawa Face-to-Face Consultation

Date: Tuesday July 13th, 2010 10am-3pm EST

Location: Rideau Tennis Club

(1 Donald St, Ottawa, Ontario K1K 4E6)

More information click here


RSVP: http://creatingtogetherottawa.eventbrite.com

Please note that lunch and refreshments will be provided.

For further information, please contact Nandini Saxena, Communications Associate at nandini_saxena@camh.net or 416-535-8501 ext. 6465

 

 

 

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 SUMMERTIME FAMILY GET TOGETHER     

WHERE: Brewer Park, Seneca Rd.,(Bronson & Sunnyside area...across from  Carleton University)

WHEN: Sunday , August 8,2010 (weather permitting)

TIME: 9:30-12:00 

Open the flyer here

Posted 2010-06-22 

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A Call for Participants for a Study of the Fetal Alcohol Spectrum Disorder Group of OttawaYou are being invited to join a study about the Fetal Alcohol Spectrum Disorder Group of Ottawa.  You have been invited because you receive information from the Fetal Alcohol Spectrum Disorder (FASD) Group of Ottawa Listserv.  As you know, the FASD Group of Ottawa Listerv is a volunteer-run service that provides notices of FASD group meetings information related to FASD in the Ottawa area.  At this point, little is known about the recipients of these emails and the benefits and challenges associated with their participation.  The purpose of this study is to better understand the characteristics and needs of the users of this service.   The study is being conducted by Maureen Jean, M.A. (Psychology Resident) and Dr. Virginia Bourget (Psychologist) of the Children’s Hospital of Eastern Ontario (CHEO).
 
What will I be asked to do?
 
If you choose to participate in this study, you will be asked to complete a 10 to 15-minute online questionnaire.  Your questionnaire will be automatically submitted after it is completed.  When you have completed the questionnaire you will be thanked for your participation and asked to exit the survey website.
 
How many people will take part in this study?
 
Approximately 30 to 40 people are expected to take part in this study.
 
Are there any benefits or risks to taking part in this study?
 
As the questionnaire is anonymous, participation in this study may cause a minimal level of stress.  Participants may benefit from receiving a summary of the study’s findings, which will be shared with the listserv users upon completion of the study.  Participants may also benefit from the incorporation of their contributions into recommendations that may guide services, in order to better serve users of the FASD Group of Ottawa Listserv and members of the FASD Group of Ottawa in the future.
 
If I choose to, how would I withdraw from the study?

Your participation in this study is voluntary.  Your decision to participate, or not, will in no way affect your participation in the FASD Group of Ottawa (listserv or meetings) or the services you may receive at CHEO currently or in the future.  You will not be treated differently if you decide not to be in the study.  If you decide to join the study now, you can change your mind and stop during the completion of the questionnaire by exiting the survey at any point. 

What about Confidentiality and Privacy?
 
The online questionnaire is anonymous.  You will not be asked to provide any identifying information.  Personal information provided will be kept strictly confidential.  The researchers will not use the information you provide for any purposes outside of this research study.
 
What is a Research Ethics Board?

The CHEO Research Ethics Board is a committee of the hospital that includes individuals from different professional backgrounds. The Board reviews all research that takes place at the hospital. Its goal is to ensure the protection of the rights and welfare of people participating in research. The Board’s work is not intended to replace a parent or child’s judgment about what decisions and choices are best for them. You may contact the Chair of the Research Ethics Board for information regarding patient’s rights in research studies at (613) 737-7600 (3272), although this person cannot provide any health-related information about the study.  The CHEO Research Ethics Board (REB) has reviewed and approved this research project. 
 
If you are interested in participating in this study, please click the link below (or paste it into your browser): 
https://www.surveymonkey.com/s/FASDgroup
 

Please complete the survey by July 9, 2010.

 

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Special Medical Clinic for Adults with Developmental Disabilities

Posted 2010-06-18 

Let’s put our support behind this much needed initiative!  Please write a letter of support by the June 25 deadline.  Or, send your own individual story as to why these services are desperately needed.  Send your (short) submission  by email by clicking here: francois.groulxja@sympatico.ca  

 

 CHEO has always handled well special needs children along with the general population but, after 18, there is no specialized medical care for, and very little medical expertise about adults with developmental disabilities.

This is a shocking fact. In 1998 $4,000 was granted from the Ontario Down Syndrome Association (DSAO) to support the development of a medical clinic for adults with Down syndrome. Dr. Lise Poirier-Groulx was the original doctor running the clinic. Now it is Dr. Suzanna Rydzik. It has been a great success and the demand is tremendous. Those people with other developmental challenges have been even less fortunate until now. Now, a clinic specialising in medical issues of ALL adults with developmental disabilities is about to become a reality.

Most of our adult “children” are living longer and facing new and unforeseen health and social challenges. It is anticipated that these challenges will multiply tremendously over the next 10 years with parents no longer there to help. There is much to explore and research, and most importantly, there are many in need of on-going medical help.

Drs. Poirier-Groulx and Dr. Rydzik have been working toward establishing a clinic especially and specifically for all adults with developmental disabilities. In May 2010, together with Dr. Rene Leiva, they made a presentation to the Bruyere Centre Board of Directors. The presentation was so well received that the Board agreed to undertake a Business Plan to a value of $50-60,000. This plan, once completed, would be implemented, but it will require community input and commitment.

Family organizations and associations such as Families Matter Co-operative and other local and regional groups are being asked to provide letters of support for this critical activity.

Essential to the support of this project is input from the families of people with developmental disabilities. Concrete examples of how the health care system does not meet the needs of people with developmental disabilities will serve to reinforce the need for such a clinic.

On June 28, Drs. Leina, Pourier-Groulx and Rydzik are meeting with the Minister of Community and Social Services to present the business plan and obtain support for the establishment of a clinic.

Your input is needed now for this to go forward with strength and conviction. The team is asking for you to share any personal incidents or situations where such a clinic would have served your families needs, and where, because it did not exist, it was detrimental.

If you have a personal situation which would further advance the cause for a clinic for people with developmental disabilities, please take the time to send a 2-3 paragraph note on the general situation. Examples can be anonymous, however, to add your name give further credibility. All information shared will be kept confidential.

It is important that all submissions be kept short, and sent no later than Friday, 25 June to meet the deadline. Please send your note in confidence to: francois.groulxja@sympatico.ca

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 CITY OF OTTAWA SUMMER CAMP INFORMATION

 

There are some spaces left in our summer camps: Summer Success, SNAP and Shared Care. I have attached the flyers for you to disseminate as you see fit. Please let me know if you have any questions. Thanks!

Jodie Gilvear

Portfolio Coordinator, Special Needs

City of Ottawa

580-2424 xt.41226

Jodie.Gilvear@ottawa.ca 

 

Download fliers here:

 

Therapeutic Recreation summer camp for children and youth with autism (SNAP)

 

Summer Success - Day camp geared for children - ages 8 to 12 - with ADD/ADHD, Learning, and Behavioural difficulties

 

Shared Care - Specialized on site support with a collective approach

 

Posted 2010-06-14

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Serena's Community Participation  

is a group of parents working with Families Matter Coop to set up

a program of community-based activities

for young adults with disabilities

who have graduated from high school

and who are looking for ways to occupy their time during the week.

 

If you are interested in joining this dynamic group of creative thinking parents,

please click on the email links below to contact

Serena at serenabebee@yahoo.ca or

Families Matter Coop at marge@familiesmattercoop.ca

Posted 2010-06-14

 

 

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Supported Independent Living Opportunity!

Looking for an intellectually disabled woman in her 20's or 30's who is ready to transition into living on her own to share an attractive home in Kanata with my daughter and an existing roommate. Located on a quiet street, this home has 4 bdrms and 3 full baths as well as an attached one bdrm apartment (where a support worker is  based)   It is fully furnished (except for the bedrooms) and tastefully decorated. Support will be provided in the mornings, evenings & part time on the weekends.  Click here for a virtual tour of the house.  
For more information please contact
Bobbie McGowan at ph: (613) 592-4053 or email:  geoffandbobbie@rogers.com
Posted 2010-06-14
  
NEW CONTACT INFORMATION
Please note our updated contact information in our new home at Citizen Advocacy. Click on the link below.
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